المؤلفون: Agata Suleja, Katarzyna Milska-Musa, Łukasz Przysło, Marzena Bednarczyk, Marcin Kostecki, Dominik Cysewski, Paweł Matryba, Anna Rozensztrauch, Michał Dwornik, Marcin Opacki, Robert Śmigiel, Kacper Łukasiewicz

المصدر: Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-13 (2024)

مصطلحات موضوعية: Angelman syndrome, Rase diseases, Healthcare organisation, Genetic testing, Medicine

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1750-1172

URL الوصول: https://doaj.org/article/8a78ed5c3bf449f580b3452a7074d394

المؤلفون: Aneta Kubisa, Anna Rozensztrauch, Dariusz Janczak, Małgorzata Paprocka-Borowicz

المصدر: Pielęgniarstwo Neurologiczne i Neurochirurgiczne, Vol 13, Iss 1, Pp 9-16 (2024)

مصطلحات موضوعية: hypoxia, newborn, perinatal asphyxia, therapeutic hypothermia, Medicine

وصف الملف: electronic resource

Relation: https://apcz.umk.pl/PNIN/article/view/53450; https://doaj.org/toc/2084-8021; https://doaj.org/toc/2299-0321

URL الوصول: https://doaj.org/article/78930847a3ef473fad0a99dd593f68b0

المؤلفون: Marlena Telenga, Anna Rozensztrauch, Kaja Giżewska-Kacprzak, Robert Śmigiel

المصدر: Journal of Clinical Medicine, Vol 13, Iss 9, p 2605 (2024)

مصطلحات موضوعية: Pitt–Hopkins syndrome, rare diseases, quality of life, disability, Medicine

Relation: https://www.mdpi.com/2077-0383/13/9/2605; https://doaj.org/toc/2077-0383; https://doaj.org/article/768a90c9525d49809ab1b0cd16b639f3

الاتاحة: https://doi.org/10.3390/jcm13092605
https://doaj.org/article/768a90c9525d49809ab1b0cd16b639f3

المؤلفون: Anna Rozensztrauch, Karolina Wieczorek, Iwona Twardak, Robert Śmigiel

المصدر: Frontiers in Psychiatry, Vol 14 (2023)

مصطلحات موضوعية: intellectual disability, down syndrome, family, child, quality of life, Psychiatry, RC435-571

وصف الملف: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fpsyt.2023.1267583/full; https://doaj.org/toc/1664-0640

URL الوصول: https://doaj.org/article/6a0da6974cac4b95a646be0d6c9dd2ed

المؤلفون: The International EA-QOL Group, Michaela Dellenmark Blom, Stefanie Witt, Benjamin Zendejas, Ivana Sabolić, Juan Domingo Porras-Hernandez, Natalie Durkin, Simon Eaton, Kjersti Birketvedt, Alba Sánchez Galán, Katalin Eszter Müller, Anna Rozensztrauch, Tutku Soyer, Siqi Li, Anastasia Fourtaka, Corne de Vos, Graham Slater, Ana Špoljarić, John Bennett, Ragnhild Emblem, Zita Andrásdi, Robert Smigiel, Dariusz Patkowski, Çiğdem Ulukaya Durakbaşa, Marina Stilinović, Frederic Gottrand, Dora Škrljak Šoša, Tomislav Luetić, Sylwester Gerus, Shen Yang, Yong Zhao, Yichao Gu, Shuangshuang Li, Diego Rodriguez-Alvirde, Orsolya Kadenczki, Miram Pasini, Vuokko Wallace, Anke Widenmann, Feliciana Milagres Sikwete, Jinshi Huang, Leopoldo Martínez Martínez, Kate Abrahamsson, Shawn Izadi, Benno M Ure, Daniel Sidler, Julia H Quitmann, Jens Dingemann

المصدر: Frontiers in Pediatrics, Vol 11 (2023)

مصطلحات موضوعية: esophageal atresia, quality of life, translation, validity, cognitive debriefing, rare disease, Pediatrics, RJ1-570

وصف الملف: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fped.2023.1253892/full; https://doaj.org/toc/2296-2360

URL الوصول: https://doaj.org/article/4829ecacbcbb4ffebab6b964fbec1314

المؤلفون: Anna, Prokopowicz, Kinga, Tułacz, Anna, Jabłońska, Maciej, Bagłaj, Anna, Rozensztrauch

المصدر: Journal of Clinical Medicine; Jan2025, Vol. 14 Issue 1, p207, 17p

مصطلحات موضوعية: MEDICAL personnel, FATIGUE (Physiology), MATERNAL health services, PUERPERIUM, INTRAPARTUM care

المؤلفون: Anna Rozensztrauch, Izabela Dzien, Robert Śmigiel

المصدر: Journal of Clinical Medicine; Volume 12; Issue 5; Pages: 1769

مصطلحات موضوعية: Menkes disease, quality of life, family impact, rare disease

وصف الملف: application/pdf

Relation: Epidemiology & Public Health; https://dx.doi.org/10.3390/jcm12051769

الاتاحة: https://doi.org/10.3390/jcm12051769

المؤلفون: Łukasz Rypicz, Anna Rozensztrauch, Olga Fedorowicz, Aleksander Włodarczyk, Katarzyna Zatońska, Raúl Juárez-Vela, Izabela Witczak

المصدر: International Journal of Environmental Research and Public Health; Volume 20; Issue 3; Pages: 1734

مصطلحات موضوعية: alarm fatigue, ergonomics, patient safety

جغرافية الموضوع: agris

وصف الملف: application/pdf

Relation: Occupational Safety and Health; https://dx.doi.org/10.3390/ijerph20031734

الاتاحة: https://doi.org/10.3390/ijerph20031734

المؤلفون: Magdalena Kłaniewska, Malgorzata Rydzanicz, Joanna Kosińska, Mateusz Biela, Anna Walczak, Elżbieta Szmida, Anna Rozensztrauch, Rafał Płoski, Robert Śmigiel

المصدر: Pediatria Polska, Vol 96, Iss 2, Pp 148-152 (2021)

مصطلحات موضوعية: mosaicism, cloves syndrome, pik3ca mutation, overgrowth., Pediatrics, RJ1-570

وصف الملف: electronic resource

Relation: https://www.termedia.pl/CLOVES-syndrome-caused-by-mosaic-mutation-in-the-PIK3CA-gene-identified-in-fibroblasts,127,44544,1,1.html; https://doaj.org/toc/0031-3939; https://doaj.org/toc/2300-8660

URL الوصول: https://doaj.org/article/8cbc9b869ca44d05a73d2111c9516a41

المؤلفون: Anna Rozensztrauch, Izabella Uchmanowicz, Barbara Suchowska, Robert Śmigiel

المصدر: Annals of Agricultural and Environmental Medicine, Vol 28, Iss 1, Pp 94-98 (2021)

مصطلحات موضوعية: psychometric evaluation, polish validation study, neonatal nursing, care rationing, neonatal extent of work rationing instrument, Agriculture, Environmental sciences, GE1-350

وصف الملف: electronic resource

Relation: http://www.aaem.pl/Translation-and-psychometric-testing-of-the-Polish-version-of-the-Neonatal-Extent,116907,0,2.html; https://doaj.org/toc/1232-1966; https://doaj.org/toc/1898-2263

URL الوصول: https://doaj.org/article/6db8887a4589478d9175c8e41bb67eca

المؤلفون: Anna Rozensztrauch, Aleksandra Kołtuniuk

المصدر: Pielęgniarstwo Neurologiczne i Neurochirurgiczne, Vol 9, Iss 4, Pp 152-159 (2020)

مصطلحات موضوعية: care, child, glioblastoma multiforme, Medicine

وصف الملف: electronic resource

Relation: https://apcz.umk.pl/PNIN/article/view/37796; https://doaj.org/toc/2084-8021; https://doaj.org/toc/2299-0321

URL الوصول: https://doaj.org/article/c45d4aac0e4a42d492937fbbb9d3e71f

المؤلفون: Anna Rozensztrauch, Robert Śmigiel

المصدر: International Journal of Environmental Research and Public Health; Volume 19; Issue 23; Pages: 16330

مصطلحات موضوعية: quality of life, Prader-Willi syndrome, family, child, rare disease

جغرافية الموضوع: agris

وصف الملف: application/pdf

Relation: Health-Related Quality of Life and Well-Being; https://dx.doi.org/10.3390/ijerph192316330

الاتاحة: https://doi.org/10.3390/ijerph192316330

المؤلفون: Vicente Gea-Caballero, Patricia Marín-Maicas, Teresa Sufrate-Sorzano, Marco Di Nitto, Anna Rozensztrauch, Raúl Juárez-Vela

المصدر: International Journal of Environmental Research and Public Health; Volume 19; Issue 10; Pages: 6223

مصطلحات موضوعية: n/a

جغرافية الموضوع: agris

وصف الملف: application/pdf

Relation: Nursing; https://dx.doi.org/10.3390/ijerph19106223

الاتاحة: https://doi.org/10.3390/ijerph19106223

المؤلفون: Anna Rozensztrauch, Aleksandra Kołtuniuk

المصدر: International Journal of Environmental Research and Public Health; Volume 19; Issue 4; Pages: 2277

مصطلحات موضوعية: quality of life, child, epilepsy, parents, family

جغرافية الموضوع: agris

وصف الملف: application/pdf

Relation: Children's Health; https://dx.doi.org/10.3390/ijerph19042277

الاتاحة: https://doi.org/10.3390/ijerph19042277

المؤلفون: Mateusz Biela, Malgorzata Rydzanicz, Agnieszka Jankowska, Agnieszka Szlagatys-Sidorkiewicz, Anna Rozensztrauch, Rafał Płoski, Robert Smigiel

المصدر: Genes; Volume 13; Issue 2; Pages: 168

مصطلحات موضوعية: ZNF699 gene, DEGCAGS syndrome, neurodevelopmental disorder

جغرافية الموضوع: agris

وصف الملف: application/pdf

Relation: Human Genomics and Genetic Diseases; https://dx.doi.org/10.3390/genes13020168

الاتاحة: https://doi.org/10.3390/genes13020168

المؤلفون: Anna Rozensztrauch, Robert Śmigiel, Dariusz Patkowski, Sylwester Gerus, Magdalena Kłaniewska, Julia Hannah Quitmann, Michaela Dellenmark-Blom

المصدر: International Journal of Environmental Research and Public Health, Vol 19, Iss 8047, p 8047 (2022)

مصطلحات موضوعية: quality of life, esophageal atresia, child, patient-reported outcome, Medicine

Relation: https://www.mdpi.com/1660-4601/19/13/8047; https://doaj.org/toc/1661-7827; https://doaj.org/toc/1660-4601; https://doaj.org/article/40199b06634f4e9c8d68d208d059a324

الاتاحة: https://doi.org/10.3390/ijerph19138047
https://doaj.org/article/40199b06634f4e9c8d68d208d059a324

المؤلفون: Magdalena Klaniewska, Krystian Toczewski, Anna Rozensztrauch, Michal Bloch, Agata Dzielendziak, Piotr Gasperowicz, Ryszard Slezak, Rafał Ploski, Małgorzata Rydzanicz, Robert Smigiel, Dariusz Patkowski

المصدر: Frontiers in Pediatrics, Vol 9 (2021)

مصطلحات موضوعية: esophageal atresia, tracheoesophageal fistula, MYCN, Feingold syndrome, familial occurrence, Pediatrics, RJ1-570

وصف الملف: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fped.2021.783553/full; https://doaj.org/toc/2296-2360

URL الوصول: https://doaj.org/article/5c17636ad65c4694a5c87f7f90539229

المؤلفون: Anna Rozensztrauch, Agnieszka Sebzda, Robert Śmigiel

المصدر: Journal of International Medical Research, Vol 49 (2021)

مصطلحات موضوعية: Medicine (General), R5-920

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1473-2300

URL الوصول: https://doaj.org/article/1bdd01a7bc7c4707b8a43104a3d03caa

المؤلفون: Anna Rozensztrauch, Magdalena Iwańska, Maciej Bagłaj

المصدر: International Journal of Environmental Research and Public Health; Volume 18; Issue 20; Pages: 10756

مصطلحات موضوعية: quality of life, myelomeningocele, comorbidities

جغرافية الموضوع: agris

وصف الملف: application/pdf

Relation: Children's Health; https://dx.doi.org/10.3390/ijerph182010756

الاتاحة: https://doi.org/10.3390/ijerph182010756

المؤلفون: Michał Czapla, Raúl Juárez-Vela, Anna Rozensztrauch, Piotr Karniej, Izabella Uchmanowicz, Iván Santolalla-Arnedo, Alicja Baska

المصدر: International Journal of Environmental Research and Public Health; Volume 18; Issue 17; Pages: 9190

مصطلحات موضوعية: lifestyle, healthy lifestyle, health behaviour, life style

جغرافية الموضوع: agris

وصف الملف: application/pdf

Relation: https://dx.doi.org/10.3390/ijerph18179190

الاتاحة: https://doi.org/10.3390/ijerph18179190