المؤلفون: Carla Gaggiano, Alessandra Del Bianco, Jurgen Sota, Stefano Gentileschi, Piero Ruscitti, Roberto Giacomelli, Matteo Piga, Francesca Crisafulli, Sara Monti, Giacomo Emmi, Amato De Paulis, Antonio Vitale, Maria Tarsia, Valeria Caggiano, Rossana Nuzzolese, Veronica Parretti, Claudia Fabiani, Giuseppe Lopalco, Armin Maier, Marco Cattalini, Donato Rigante, Marcello Govoni, Francesca Li Gobbi, Serena Guiducci, Paola Parronchi, Achille Marino, Francesco Ciccia, Maria Cristina Maggio, Emma Aragona, Elena Bartoloni, Annamaria Iagnocco, Ombretta Viapiana, Gian Domenico Sebastiani, Silvana Guerriero, Antonella Insalaco, Emanuela Del Giudice, Giovanni Conti, Patrizia Barone, Alma Nunzia Olivieri, Antonio Brucato, Francesco Carubbi, Paola Triggianese, Angela Mauro, Gian Marco Tosi, Alex Fonollosa, Henrique Ayres Mayrink Giardini, Gaafar Ragab, Samar Tharwat, José Hernández-Rodríguez, Petros P. Sfikakis, Katerina Laskari, Anastasios Karamanakos, Gerard Espinosa, Farhad Shahram, Haner Direskeneli, Andrea Hinojosa-Azaola, Daniela Opris-Belinski, Ibrahim A. AlMaghlouth, Gülen Hatemi, Mehmet Akif Eksin, Fatos Önen, Ewa Więsik-Szewczyk, Nurullah Akkoç, Abdurrahman Tufan, Ali Şahin, Şükran Erten, Seza Ozen, Ezgi Deniz Batu, Bruno Frediani, Alberto Balistreri, Luca Cantarini

المصدر: Frontiers in Medicine, Vol 10 (2023)

مصطلحات موضوعية: Behçet’s disease, patient-driven registries, rare diseases, autoinflammatory diseases, patient involvement, patient-reported outcomes, Medicine (General), R5-920

وصف الملف: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fmed.2023.1188021/full; https://doaj.org/toc/2296-858X

URL الوصول: https://doaj.org/article/0f0492e23f7f4763bef8b6d70b288317

المؤلفون: Rosaria Talarico, Diana Marinello, Arianna Manzo, Sara Cannizzo, Ilaria Palla, Simone Ticciati, Andrea Gaglioti, Leopoldo Trieste, Lorenzo Pisa, Luciano Badalamenti, Girolamo Randisi, Alessandra Del Bianco, Valentina Lorenzoni, Giuseppe Turchetti, Marta Mosca

المصدر: Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-11 (2021)

مصطلحات موضوعية: Medicine

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1750-1172

URL الوصول: https://doaj.org/article/c080945374c74e15b5cf2bfde6989557

المؤلفون: Diana Marinello, Federica Di Cianni, Alessandra Del Bianco, Irene Mattioli, Jurgen Sota, Luca Cantarini, Giacomo Emmi, Pietro Leccese, Giuseppe Lopalco, Marta Mosca, Angela Padula, Matteo Piga, Carlo Salvarani, Domenica Taruscio, Rosaria Talarico

المصدر: Frontiers in Medicine, Vol 8 (2021)

مصطلحات موضوعية: Behçet disease, patient empowerment, patient education, decision making process (DMP), rare disease (RD), Medicine (General), R5-920

وصف الملف: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fmed.2021.769870/full; https://doaj.org/toc/2296-858X

URL الوصول: https://doaj.org/article/3265e483562646e5bd5cd5f2c02d686e

المؤلفون: Diana Marinello, Arianna Manzo, Ilaria Palla, Alessandra Del Bianco, Marta Mosca, Domenica Taruscio, Stefania Polvani, Rosaria Talarico

المصدر: Clinical and experimental rheumatology. 40(8)

مصطلحات موضوعية: Narration, Rare Diseases, Rheumatology, Caregivers, Behcet Syndrome, Immunology, Narrative Medicine, Immunology and Allergy, Humans

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::db722469102ec2552170d3547baf8a3f
https://pubmed.ncbi.nlm.nih.gov/36106539

المؤلفون: Alessandra Del Bianco, Graziella Filippini, Chiara Merlo, Lorenzo Maggi, Francesca Ghilotti, Francesca Nava, Gulen Hatemi, Irene Tramacere

المصدر: The Cochrane Library

مصطلحات موضوعية: Biological Products, medicine.medical_specialty, education.field_of_study, business.industry, Behcet Syndrome, Population, MEDLINE, Interferon-alpha, Alpha interferon, CINAHL, Clinical trial, Quality of life, Data extraction, Adrenal Cortex Hormones, Central Nervous System Diseases, Immunology, medicine, Humans, Pharmacology (medical), Colchicine, Intensive care medicine, business, education, Immunosuppressive Agents, Cohort study

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::884dd73d4bea4b7766e66f3be9bb6234
https://doi.org/10.1002/14651858.cd010729.pub2

المؤلفون: Francesca Nava, Francesca Ghilotti, Gulen Hatemi, Alessandra Del Bianco, Chiara Merlo, Graziella Filippini, Irene Tramacere

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::478f52d5d676db8059b37fc286f3282e
https://doi.org/10.1002/14651858.cd010729

المؤلفون: Alessandra Del Bianco, Ugo Menchini, Lorenzo Vannozzi

المصدر: Le malattie rare del sistema immunitario ISBN: 9788847053939

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::baefccbdbaac0e9f1b30c9c7326f97a0
https://doi.org/10.1007/978-88-470-5394-6_13

المؤلفون: Giacomo Emmi, Tommaso Barnini, Alessandra Del Bianco

المصدر: Le malattie rare del sistema immunitario ISBN: 9788847053939

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::305a25f6ba2fdf91a180bdf639dcd053
https://doi.org/10.1007/978-88-470-5394-6_12

المؤلفون: Lucia Crapesi, Gianfranco Guarnieri, Maria Alessandra Del Bianco, Roberta Situlin, Gabriele Toigo

المصدر: Advances in Experimental Medicine and Biology ISBN: 9781461283133

مصطلحات موضوعية: Muscle protein, medicine.medical_specialty, Protein metabolism, Skeletal muscle, Disease, Biology, Cathepsin B, chemistry.chemical_compound, Protein catabolism, Endocrinology, medicine.anatomical_structure, chemistry, Internal medicine, medicine, Whole body

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::1b9129f00d5dfae08b4da792bdc63aed
https://doi.org/10.1007/978-1-4613-1057-0_29