المؤلفون: Boston Children's Hospital, Boston, MA, USA, Hospital for Special Surgery, New York, Joseph M Sanzari Children's Hospital, Hackensack University Medical Center, Hackensack, NJ, USA, Riley Children's Hospital, Indianapolis, IN, USA, University of North Carolina, Chapel Hill, NC, USA, Royal Children's Hospital, Melbourne, Australia, Hacettepe University, Ankara, Turkey, Bambino Gesù Children's Hospital, Rome, Italy, University of British Columbia, Vancouver, BC, Canada, Meyer Children's Hospital, Florence, Italy, Mansoura University, University of Utah, Salt Lake City, UT, USA, University of Iowa Carver College of Medicine, Iowa City, IA, USA, Ann & Robert Lurie Children's Hospital of Chicago, Chicago, IL, USA, Palacky University Olomouc Institute of Molecular and Translational Medicine, Olomouc, Czechia, Alder Hey Children's NHS Foundation Trust Hospital, Liverpool, UK, University of Calgary, Calgary, Alberta, Canada

المساهمون: Yongdong (Dan) Zhao, Principle Investigator

المصدر: CHronic Nonbacterial Osteomyelitis International Registry (CHOIR)
Zhao Y, Wu EY, Oliver MS, Cooper AM, Basiaga ML, Vora SS, Lee TC, Fox E, Amarilyo G, Stern SM, Dvergsten JA, Haines KA, Rouster-Stevens KA, Onel KB, Cherian J, Hausmann JS, Miettunen P, Cellucci T, Nuruzzaman F, Taneja A, Barron KS, Hollander MC, Lapidus SK, Li SC, Ozen S, Girschick H, Laxer RM, Dedeoglu F, Hedrich CM, Ferguson PJ; Chronic Nonbacterial Osteomyelitis/Chronic Recurrent Multifocal Osteomyelitis Study Group and the Childhood Arthritis and Rheumatology Research Alliance Scleroderma, Vasculitis, Autoinflammatory and Rare Diseases Subcommittee. Consensus Treatment Plans for Chronic Nonbacterial Osteomyelitis Refractory to Nonsteroidal Antiinflammatory Drugs and/or With Active Spinal Lesions. Arthritis Care Res (Hoboken). 2018 Aug;70(8):1228-1237. doi: 10.1002/acr.23462. Epub 2018 Jul 12.
Zhao Y, Ferguson PJ. Chronic Nonbacterial Osteomyelitis and Chronic Recurrent Multifocal Osteomyelitis in Children. Pediatr Clin North Am. 2018 Aug;65(4):783-800. doi: 10.1016/j.pcl.2018.04.003.
Oliver M, Lee TC, Halpern-Felsher B, Murray E, Schwartz R, Zhao Y; CARRA SVARD CRMO/CNO workgroup. Disease burden and social impact of pediatric chronic nonbacterial osteomyelitis from the patient and family perspective. Pediatr Rheumatol Online J. 2018 Dec 14;16(1):78. doi: 10.1186/s12969-018-0294-1.
Beck C, Morbach H, Beer M, Stenzel M, Tappe D, Gattenlohner S, Hofmann U, Raab P, Girschick HJ. Chronic nonbacterial osteomyelitis in childhood: prospective follow-up during the first year of anti-inflammatory treatment. Arthritis Res Ther. 2010;12(2):R74. doi: 10.1186/ar2992.
Girschick H, Finetti M, Orlando F, Schalm S, Insalaco A, Ganser G, Nielsen S, Herlin T, Kone-Paut I, Martino S, Cattalini M, Anton J, Mohammed Al-Mayouf S, Hofer M, Quartier P, Boros C, Kuemmerle-Deschner J, Pires Marafon D, Alessio M, Schwarz T, Ruperto N, Martini A, Jansson A, Gattorno M; Paediatric Rheumatology International Trials Organisation (PRINTO) and the Eurofever registry. The multifaceted presentation of chronic recurrent multifocal osteomyelitis: a series of 486 cases from the Eurofever international registry. Rheumatology (Oxford). 2018 Jul 1;57(7):1203-1211. doi: 10.1093/rheumatology/key058. Erratum In: Rheumatology (Oxford). 2018 Aug 1;57(8):1504. doi: 10.1093/rheumatology/key143.
Voit AM, Arnoldi AP, Douis H, Bleisteiner F, Jansson MK, Reiser MF, Weckbach S, Jansson AF. Whole-body Magnetic Resonance Imaging in Chronic Recurrent Multifocal Osteomyelitis: Clinical Longterm Assessment May Underestimate Activity. J Rheumatol. 2015 Aug;42(8):1455-62. doi: 10.3899/jrheum.141026. Epub 2015 May 15.
Wu EY, Oliver M, Scheck J, Lapidus S, Akca UK, Yasin S, Stern SM, Insalaco A, Pardeo M, Simonini G, Marrani E, Wang X, Huang B, Kovalick LK, Rosenwasser N, Casselman G, Liau A, Shao Y, Yang C, Mosa DM, Tucker L, Girschick H, Laxer RM, Akikusa JD, Hedrich CM, Onel K, Dedeoglu F, Twilt M, Ferguson PJ, Ozen S, Zhao Y. Feasibility of Conducting Comparative Effectiveness Research and Validation of a Clinical Disease Activity Score for Chronic Nonbacterial Osteomyelitis. J Rheumatol. 2023 Oct;50(10):1333-1340. doi: 10.3899/jrheum.2022-1323. Epub 2023 Jul 1.

المؤلفون: Najm, Aurélie, Kostine, Marie, Pauling, John D., Ferreira, Ana Carina, Stevens, Kate, Smith, Evelyn, Eguiluz-Gracia, Ibon, Studenic, Paul, Rodríguez-Carrio, Javier, Ramiro, Sofia, Alunno, Alessia, Richez, Christophe, Nikiphorou, Elena, Sepriano, Alexandre

المساهمون: Najm,A Rheumatology, University of Glasgow Institute of Infection Immunity and Inflammation, Glasgow, UK. Kostine,M, Richez,C Rheumatology, Hôpital Pellegrin, Bordeaux, France. Kostine,M, Richez,C Universite de Bordeaux, Bordeaux, France. Pauling,JD Royal National Hospital for Rheumatic Diseases, Royal United Hospital Bath NHS Trust, Bath, UK. Pauling,JD Department of Pharmacy and Pharmacology, University of Bath, Bath, UK. Ferreira,AC Nephrology Department, Hospital Curry Cabral CHULC, Lisbon, Portugal. Ferreira,AC NOVA Medical School, Lisbon, Portugal. Stevens,K Glasgow Renal and Transplant Unit, Queen Elizabeth University Hospital, Glasgow, UK. Smith,E Department of Paediatric Rheumatology, Alder Hey Children’s NHS Foundation Trust Hospital, Liverpool, UK. Eguiluz-Gracia,I Allergy Unit, Hospital Regional Universitario de Malaga, Instituto de Investigacion Biomedica de Malaga (Ibima)-aradyal,Malaga, Spain. Studenic, P Department of Internal Medicine 3, Division of Rheumatology, Medical University Vienna, Vienna, Austria. Rodríguez-Carrio Area of Immunology, Universidad de Oviedo, Oviedo, Spain. Ramiro,S Rheumatology, Leiden University Medical Center, Leiden, Netherlands. Ramiro,S, Sepriano,A Rheumatology, Zuyderland Medical Centre Heerlen, Heerlen, Netherlands. Alunno, A Department of Medicine, Rheumatology Unit, University of Perugia, Perugia, Italy. Nikiphorou,E Rheumatology Research, King’s College London Academic Department of Rheumatology, London, UK. Nikiphorou,E Applied Health Research, University College London, London, UK. Sepriano,A NOVA Medical School, Universidade NOVA de Lisboa, Lisbon, Portugal.

مصطلحات موضوعية: Surveys and questionnaires, Research personnel, Work, Research, Specialization, Intersectoral collaboration, Social networking, Patient care, Encuestas y cuestionarios, Investigadores, Trabajo, Investigación, Especialización, Colaboración intersectorial, Red social, Atención al paciente, Medical Subject Headings::Persons::Persons::Age Groups::Adult, Medical Subject Headings::Health Care::Environment and Public Health::Public Health::Epidemiologic Factors::Age Factors, Medical Subject Headings::Check Tags::Female, Medical Subject Headings::Health Care::Health Care Quality, Access, and Evaluation::Delivery of Health Care::Health Services Needs and Demand, Medical Subject Headings::Organisms::Eukaryota::Animals::Chordata::Vertebrates::Mammals::Primates::Haplorhini::Catarrhini::Hominidae::Humans, Medical Subject Headings::Check Tags::Male, Medical Subject Headings::Persons::Persons::Age Groups::Adult::Middle Aged, Medical Subject Headings::Health Care::Health Services Administration::Patient Care Management::Patient Care Team, Medical Subject Headings::Information Science::Information Science::Communication::Interdisciplinary Communication, Medical Subject Headings::Persons::Persons::Occupational Groups::Research Personnel, Medical Subject Headings::Disciplines and Occupations::Health Occupations::Specialization

وصف الملف: application/pdf

Relation: https://rmdopen.bmj.com/content/6/2/e001398.long; Najm A, Kostine M, Pauling JD, Ferreira AC, Stevens K, Smith E, et al. Multidisciplinary collaboration among young specialists: results of an international survey by the emerging EULAR network and other young organisations. RMD Open. 2020 Sep;6(2):e001398; http://hdl.handle.net/10668/3557; PMC7525255

الاتاحة: http://hdl.handle.net/10668/3557
https://doi.org/10.1136/rmdopen-2020-001398

المؤلفون: John D Pauling, Javier Rodríguez-Carrio, Alexandre Sepriano, Kate Stevens, Sofia Ramiro, Aurélie Najm, Alessia Alunno, Ibon Eguiluz-Gracia, Ana Carina Ferreira, Elena Nikiphorou, Marie Kostine, Paul Studenic, Evelyn Smith, Christophe Richez

المساهمون: [Najm,A] Rheumatology, University of Glasgow Institute of Infection Immunity and Inflammation, Glasgow, UK. [Kostine,M, Richez,C] Rheumatology, Hôpital Pellegrin, Bordeaux, France. [Kostine,M, Richez,C] Universite de Bordeaux, Bordeaux, France. [Pauling,JD] Royal National Hospital for Rheumatic Diseases, Royal United Hospital Bath NHS Trust, Bath, UK. [Pauling,JD] Department of Pharmacy and Pharmacology, University of Bath, Bath, UK. [Ferreira,AC] Nephrology Department, Hospital Curry Cabral CHULC, Lisbon, Portugal. [Ferreira,AC] NOVA Medical School, Lisbon, Portugal. [Stevens,K] Glasgow Renal and Transplant Unit, Queen Elizabeth University Hospital, Glasgow, UK. [Smith,E] Department of Paediatric Rheumatology, Alder Hey Children’s NHS Foundation Trust Hospital, Liverpool, UK. [Eguiluz-Gracia,I] Allergy Unit, Hospital Regional Universitario de Malaga, Instituto de Investigacion Biomedica de Malaga (Ibima)-aradyal,Malaga, Spain. [Studenic, P] Department of Internal Medicine 3, Division of Rheumatology, Medical University Vienna, Vienna, Austria. [Rodríguez-Carrio] Area of Immunology, Universidad de Oviedo, Oviedo, Spain. [Ramiro,S] Rheumatology, Leiden University Medical Center, Leiden, Netherlands. [Ramiro,S, Sepriano,A] Rheumatology, Zuyderland Medical Centre Heerlen, Heerlen, Netherlands. [Alunno, A] Department of Medicine, Rheumatology Unit, University of Perugia, Perugia, Italy. [Nikiphorou,E] Rheumatology Research, King’s College London Academic Department of Rheumatology, London, UK. [Nikiphorou,E] Applied Health Research, University College London, London, UK. [Sepriano,A] NOVA Medical School, Universidade NOVA de Lisboa, Lisbon, Portugal.

المصدر: RMD Open
RMD Open, 6(2). BMJ PUBLISHING GROUP
Scopus
RUO: Repositorio Institucional de la Universidad de Oviedo
Universidad de Oviedo (UNIOVI)
RMD OPEN
RUO. Repositorio Institucional de la Universidad de Oviedo
instname

مصطلحات موضوعية: Male, Work, Investigadores, Epidemiology, Disciplines and Occupations::Health Occupations::Specialization [Medical Subject Headings], Information Science::Information Science::Communication::Interdisciplinary Communication [Medical Subject Headings], Organisms::Eukaryota::Animals::Chordata::Vertebrates::Mammals::Primates::Haplorhini::Catarrhini::Hominidae::Humans [Medical Subject Headings], 0302 clinical medicine, Multidisciplinary approach, Phone, Surveys and Questionnaires, Atención al paciente, Immunology and Allergy, Medicine, 030212 general & internal medicine, Practice Patterns, Physicians', Research personnel, Persons::Persons::Occupational Groups::Research Personnel [Medical Subject Headings], Health services research, Age Factors, Multidisciplinary Collaboration, Especialización, Middle Aged, Research Personnel, Encuestas y cuestionarios, Trabajo, Investigación, Female, Health Care::Environment and Public Health::Public Health::Epidemiologic Factors::Age Factors [Medical Subject Headings], Specialization, Adult, medicine.medical_specialty, Social networking, Red social, Immunology, Interdisciplinary Research, Check Tags::Male [Medical Subject Headings], Patient care, Health Care::Health Services Administration::Patient Care Management::Patient Care Team [Medical Subject Headings], Education, 03 medical and health sciences, Rheumatology, Colaboración intersectorial, Humans, Social media, Health Care::Health Care Quality, Access, and Evaluation::Delivery of Health Care::Health Services Needs and Demand [Medical Subject Headings], Intersectoral collaboration, Persons::Persons::Age Groups::Adult [Medical Subject Headings], 030203 arthritis & rheumatology, Patient Care Team, Health Services Needs and Demand, business.industry, Research, International survey, Persons::Persons::Age Groups::Adult::Middle Aged [Medical Subject Headings], Clinical research, Check Tags::Female [Medical Subject Headings], Family medicine, Interdisciplinary Communication, business, Surveys and questionnaires

وصف الملف: application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0910159ba764b47847c6edcf829e8a99
https://hdl.handle.net/1887/3240278