المؤلفون: Vasiliki Rahimzadeh, Jinyoung Baek, Jonathan Lawson, Edward S. Dove

المصدر: BMC Medical Ethics, Vol 25, Iss 1, Pp 1-10 (2024)

مصطلحات موضوعية: Data access committee, Implementation science, Automation, Decision support, Genomic data, Ethics, Medical philosophy. Medical ethics, R723-726

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1472-6939

URL الوصول: https://doaj.org/article/fb741a5d289a45d1b4663166de465166

المؤلفون: Iacomussi, Sofia, Casareto, Lorena, Locatelli, Manuela, Wang, Chiuhui Mary, Borroni, Simona, Mascalzoni, Deborah, 1973, Sangiorgi, Luca, Coviello, Domenico, Zecchinelli, Anna Lena, Renieri, Alessandra, Pegoraro, Elena, Sciacco, Monica, Andreetta, Francesca, Merla, Giuseppe, Nigro, Vincenzo, Garavaglia, Barbara, Filocamo, Mirella, Baldo, Chiara, Goldwurm, Stefano, Cilia, Roberto, Angelini, Corrado, Moggio, Maurizio, Mora, Marina, Politano, Luisa

المصدر: Biopreservation and Biobanking. 19(6):483-492

مصطلحات موضوعية: biobanking, sample and data access, Access committee, governance, networking, ethical, legal and societal issues

وصف الملف: electronic

URL الوصول: https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-468459
https://doi.org/10.1089/bio.2021.0057
https://uu.diva-portal.org/smash/get/diva2:1640681/FULLTEXT01.pdf

المؤلفون: Uddin, Ruzena, Eaton, Benjamin, Newhouse, Steven, Hann, Evan, Wildish, Anthony, Bioku, Idowu

مصطلحات موضوعية: secure data environment, SDE, Trusted Research Environment, TRE, Personalised Medicine, Data Warehouse, Precision Medicine, Health Data, Data Access Committee

Relation: https://doi.org/10.5281/zenodo.13886267; https://doi.org/10.5281/zenodo.13886268; oai:zenodo.org:13886268

الاتاحة: https://doi.org/10.5281/zenodo.13886268

المؤلفون: Carnuccio, Patrick, Cowley, Mark, Davies, Kylie, Druken, Kelsey, Holliday, Jessica, Kummerfeld, Sarah, Monro, David, Patterson, Andrew, Pearson, John, Pope, Bernie, Scullen, John, Shadbolt, Marion, Wong-Erasmus, Marie, Wood, Scott

مصطلحات موضوعية: Data Access Committee, Data Access Control, Data Access Requests, Data Access Application, Principal Investigator, Research, BAM, Data Sharing, Governance, Ethics, Human Genomics, Automation, Technology Infrastructure, Technology platform, Data Policy, REMS, DUOS

Relation: https://zenodo.org/communities/australianbiocommons; https://doi.org/10.5281/zenodo.6644049; https://doi.org/10.5281/zenodo.10725126; oai:zenodo.org:10725126

الاتاحة: https://doi.org/10.5281/zenodo.10725126

المؤلفون: Carnuccio, Patrick, Cowley, Mark, Davies, Kylie, Green, Cherry, Hobbs, Matthew, Holliday, Jessica, Kummerfeld, Sarah, Monro, David, Patterson, Andrew, Pearson, John, Pope, Bernard, Scullen, John, Shadbolt, Marion, Wong-Erasmus, Marie, Wood, Scott

مصطلحات موضوعية: Data Access Committee, Data Access Control, Data Access Requests, Data Access Application, Principal Investigator, BAM, Data sharing, Governance, Ethics, Human genomics, Automation, technology infrastructure, Data policy, REMS, DUOS

Relation: https://doi.org/10.5281/zenodo.6644049; https://zenodo.org/communities/australianbiocommons; https://doi.org/10.5281/zenodo.10720099; https://doi.org/10.5281/zenodo.10720100; oai:zenodo.org:10720100

الاتاحة: https://doi.org/10.5281/zenodo.10720100

المؤلفون: Moran N. Cabili, Jonathan Lawson, Andrea Saltzman, Greg Rushton, Pearl O’Rourke, John Wilbanks, Laura Lyman Rodriguez, Tommi Nyronen, Mélanie Courtot, Stacey Donnelly, Anthony A. Philippakis

المصدر: Cell Genomics, Vol 1, Iss 2, Pp 100031- (2021)

مصطلحات موضوعية: Data Access Committee, Data Use, GA4GH, Passport, Genetics, QH426-470, Internal medicine, RC31-1245

وصف الملف: electronic resource

Relation: http://www.sciencedirect.com/science/article/pii/S2666979X21000380; https://doaj.org/toc/2666-979X

URL الوصول: https://doaj.org/article/8977b5eb294b43259ffd2fc21cc9252d

المؤلفون: Phaik Yeong Cheah, Jan Piasecki

المصدر: BMC Medical Ethics, Vol 21, Iss 1, Pp 1-8 (2020)

مصطلحات موضوعية: Data Access Committee, Data sharing, Ethics, Research ethics, Research ethics committees, Medical philosophy. Medical ethics, R723-726

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1472-6939

URL الوصول: https://doaj.org/article/1879052c9df84927bf6d55b52720e7a4

المؤلفون: Carnuccio, Patrick, Cowley, Mark, Davies, Kylie, Druken, Kelsey, Holliday, Jessica, Kummerfeld, Sarah, Monro, David, Patterson, Andrew, Pearson, John, Pope, Bernie, Scullen, John, Shadbolt, Marion, Wong-Erasmus, Marie, Wood, Scott

مصطلحات موضوعية: Data Access Committee, Data Access Control, Data Access Requests, Data Access Application, Principal Investigator, Research, BAM, Data Sharing, Governance, Ethics, Human Genomics, Automation, Technology Infrastructure, Technology platform, Data Policy, REMS, DUOS

Relation: https://zenodo.org/communities/australianbiocommons; https://doi.org/10.5281/zenodo.6644049; https://doi.org/10.5281/zenodo.6644050; oai:zenodo.org:6644050

الاتاحة: https://doi.org/10.5281/zenodo.6644050

المؤلفون: Sumir Panji, Nicola J. Mulder

مصطلحات موضوعية: Bioinformatics, African Genomics, H3Africa, H3ABioNet, Common Infrastructure for National Cohorts in Europe, Canada and Africa (CINECA), Global Alliance For Genomic Health (GA4GH), Data Access Committee (DAC), Human genomic data privacy, Data Use Ontology (DUO), Data Use Researcher Identity (DURI), FAIR, Open Data

Relation: https://figshare.com/articles/presentation/Genomic_Data_Access_in_the_Era_of_Personal_Privacy_-_challenges_and_opportunities/11999919

الاتاحة: https://doi.org/10.25375/uct.11999919.v1
https://figshare.com/articles/presentation/Genomic_Data_Access_in_the_Era_of_Personal_Privacy_-_challenges_and_opportunities/11999919

المؤلفون: Madeleine J. Murtagh, Mwenza T. Blell, Olly W. Butters, Lorraine Cowley, Edward S. Dove, Alissa Goodman, Rebecca L. Griggs, Alison Hall, Nina Hallowell, Meena Kumari, Massimo Mangino, Barbara Maughan, Melinda C. Mills, Joel T. Minion, Tom Murphy, Gillian Prior, Matthew Suderman, Susan M. Ring, Nina T. Rogers, Stephanie J. Roberts, Catherine Van der Straeten, Will Viney, Deborah Wiltshire, Andrew Wong, Neil Walker, Paul R. Burton

المصدر: Human Genomics, Vol 12, Iss 1, Pp 1-12 (2018)

مصطلحات موضوعية: Data ethics, Data governance, Data access, Data Access Committee (DAC), Governance, Participant involvement, Medicine, Genetics, QH426-470

وصف الملف: electronic resource

Relation: http://link.springer.com/article/10.1186/s40246-018-0154-6; https://doaj.org/toc/1479-7364

URL الوصول: https://doaj.org/article/733decf5a9504990937c04bf2531d84a

المؤلفون: Vasiliki Rahimzadeh, Jonathan Lawson, Greg Rushton, Edward S. Dove

المصدر: Rahimzadeh, V, Lawson, J, Rushton, G & Dove, E S 2022, ' Leveraging algorithms to improve decision-making workflows for genomic data access and management ', Biopreservation and biobanking, vol. 20, no. 5, pp. 429-435 . https://doi.org/10.1089/bio.2022.0042

مصطلحات موضوعية: automated decision system, Medicine (miscellaneous), health, Genomics, Cell Biology, General Medicine, ethics, Research Personnel, General Biochemistry, Genetics and Molecular Biology, Workflow, Artificial Intelligence, data access committee, genomics, Humans

وصف الملف: application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b46813aa68e40c2bdbb0014a9c831069
https://doi.org/10.1089/bio.2022.0042

المؤلفون: Lambros Koufariotis (8354115), Hong You (9625201), Donald McManus (9625204)

مصطلحات موضوعية: Parasitology, Data access agreements, Data Access Committee (DAC)

Relation: https://figshare.com/articles/online_resource/QIMR_Berghofer_data_access_agreement_for_Study_EGAS00001004455_DAC_EGAC00001001798/13218857

الاتاحة: https://doi.org/10.6084/m9.figshare.13218857.v1

المؤلفون: Teare, Harriet J.A., De Masi, Federico, Banasik, Karina, Barnett, Anna, Herrgard, Sanna, Jablonka, Bernd, Postma, Jacqueline W.M., McDonald, Timothy J., Forgie, Ian, Chmura, Piotr J., Rydzka, Emil K., Gupta, Ramneek, Brunak, Soren, Pearson, Ewan, Kaye, Jane

المصدر: Life Sciences, Society and Policy EXODIAB: Excellence of Diabetes Research in Sweden. 14(1)

مصطلحات موضوعية: Data access, Data access committee, Governance, IMI project, Samhällsvetenskap, Medie- och kommunikationsvetenskap, Biblioteks-och informationsvetenskap, Social Sciences, Media and Communications, Information Studies

URL الوصول: https://lup.lub.lu.se/record/7dbf5e1e-c2ea-470d-b07a-f73770b5bc71
http://dx.doi.org/10.1186/s40504-018-0083-0

المؤلفون: Murtagh, Madeleine J, Blell, Mwenza T, Butters, Olly W, Cowley, Lorraine, Dove, Edward S, Goodman, Alissa, Griggs, Rebecca L, Hall, Alison, Hallowell, Nina, Kumari, Meena, Mangino, Massimo, Maughan, Barbara, Mills, Melinda C, Minion, Joel T, Murphy, Tom, Prior, Gillian, Suderman, Matthew, Ring, Susan M, Rogers, Nina T, Roberts, Stephanie J, Van der Straeten, Catherine, Viney, Will, Wiltshire, Deborah, Wong, Andrew, Walker, Neil, Burton, Paul R

مصطلحات موضوعية: Data Access Committee (DAC), Data access, Data ethics, Data governance, Ethnography, Governance, Interdisciplinarity, Participant involvement, Qualitative research, Big Data, Biomedical Research, Databases, Genetic, Genomics, Genotype, Humans, Information Dissemination

وصف الملف: Electronic; application/pdf

Relation: https://www.repository.cam.ac.uk/handle/1810/280170

الاتاحة: https://www.repository.cam.ac.uk/handle/1810/280170
https://doi.org/10.17863/CAM.27538

المؤلفون: Murtagh, M, Blell, M, Butters, O, Cowley, L, Dove, E, Goodman, A, Griggs, R, Hall, A, Hallowell, N, Kumari, M, Mangino, M, Maugham, B, Mills, M, Minion, J, Murphy, T, Prior, G, Suderman, M, Ring, S, Rogers, NT, Roberts, S, Van Der Straeten, C, Viney, W, Wiltshire, D, Wong, A, Walker, N, Burton, P

المصدر: Human Genomics , 12 , Article 24. (2018)

مصطلحات موضوعية: Data ethics, Data governance, Data access, Data Access Committee (DAC), Governance, Participant involvement, Ethnography, Qualitative research, Interdisciplinarity

وصف الملف: text

Relation: https://discovery.ucl.ac.uk/id/eprint/10047596/1/Better_governance_better_access_practising_respons.pdf; https://discovery.ucl.ac.uk/id/eprint/10047596/

الاتاحة: https://discovery.ucl.ac.uk/id/eprint/10047596/1/Better_governance_better_access_practising_respons.pdf
https://discovery.ucl.ac.uk/id/eprint/10047596/

المؤلفون: Iacomussi S., Casareto L., Locatelli M., Wang C. M., Borroni S., Mascalzoni D., Sangiorgi L., Nigro V.

المساهمون: Iacomussi, S., Casareto, L., Locatelli, M., Wang, C. M., Borroni, S., Mascalzoni, D., Sangiorgi, L., Nigro, V.

مصطلحات موضوعية: Access Committee, Biobanking, Ethical, Governance, Legal and Societal Issue, Networking, Sample and data acce, Biological Specimen Bank, Biomedical Research, droit, scipo

Relation: http://hdl.handle.net/11591/464030

الاتاحة: http://hdl.handle.net/11591/464030

المؤلفون: Böhmer, Jasmin K.

مصطلحات موضوعية: Data Use Ontology, Informed Consent, Genomic Data, GA4GH, European Genome Phenome Archive, Genomics, Data Use Conditions, machine actionable, DUOS, mutli omics data, omics, DUO, EGA, Consent Codes, Interoperabilty, DAC, Data Access Committee

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1f4ca5ff55c949ae8efb1b0940ed97df

المؤلفون: Georgia Southern University

المصدر: Jiann-Ping Hsu College of Public Health News

مصطلحات موضوعية: Georgia Southern University, College of Public Health (COPH), Office of Inclusive Excellence, Maya Clark, Inclusive Excellence Faculty and Staff Fellows, Department of Rehabilitation Sciences, Waters College of Health Professions Inclusive, Equity and Access Committee, Medicine and Health Sciences, Public Health

وصف الملف: application/pdf

Relation: https://digitalcommons.georgiasouthern.edu/coph-news-online/256; https://digitalcommons.georgiasouthern.edu/context/coph-news-online/article/1254/viewcontent/2020_09.16_COPH_News.pdf

الاتاحة: https://digitalcommons.georgiasouthern.edu/coph-news-online/256
https://digitalcommons.georgiasouthern.edu/context/coph-news-online/article/1254/viewcontent/2020_09.16_COPH_News.pdf

المؤلفون: Lennart Martens, Eric W. Deutsch, Oliver Kohlbacher, Nuno Bandeira, Juan Antonio Vizcaíno

المصدر: Molecular & Cellular Proteomics
Molecular & Cellular Proteomics : MCP

مصطلحات موضوعية: Proteomics, Information privacy, Computer science, Data management, NIST, National Institute of Standards and Technology, Biochemistry, PSM, Peptide Spectrum Match, Field (computer science), Analytical Chemistry, NIH, National Institutes of Health, HIPAA, Health Insurance Portability and Accountability, DIA, Data Independent Acquisition, SMEs, Small and Medium-sized Enterprises, GEO, Gene Expression Omnibus, Data Management, mass spectrometry, media_common, 0303 health sciences, Variant Call Format, 030302 biochemistry & molecular biology, EGA, European Genome-phenome Archive, GA4GH, Global Alliance for Genomics and Health, 3. Good health, DAC, Data Access Committee, General Data Protection Regulation, Perspective, CPTAC, Clinical Proteome Tumor Analysis Consortium, HCD, Higher-energy collisional dissociation, SAAVs, Single Amino Acid Variants, Personally identifiable information, Confidentiality, policy, dbGAP, database of Genotypes and Phenotypes, IRB, Institutional Review Board, databases, JGA, Japanese Genotype-phenotype Archive, VCF, Variant Call Format, EBI, European Bioinformatics Institute, AD, Alzheimer’s disease, GDPR, General Data Protection Regulation, 03 medical and health sciences, PRM, Parallel Reaction Monitoring, Humans, media_common.cataloged_instance, European union, Molecular Biology, PII, Personally Identifiable Information, SRM, Selected Reaction Monitoring, 030304 developmental biology, FDR, False Discovery Rate, MS, Mass Spectrometry, Information Dissemination, business.industry, controlled access data, ethics, Data science, PTM, Posttranslational Modification, ComputingMethodologies_PATTERNRECOGNITION, DDA, Data-Dependent Acquisition, business

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::636805ad221cca2eb91ac4d7b88355d6
https://doi.org/10.1016/j.mcpro.2021.100071

المؤلفون: Murtagh, Madeleine J., Blell, Mwenza T., Butters, Olly W., Cowley, Lorraine, Dove, Edward S., Goodman, Alissa, Griggs, Rebecca L., Hall, Alison, Hallowell, Nina, Kumari, Meena, Mangino, Massimo, Maughan, Barbara, Mills, Melinda C., Minion, Joel T., Murphy, Tom, Prior, Gillian, Suderman, Matthew, Ring, Susan M., Rogers, Nina T., Roberts, Stephanie J., Van Der Straeten, Catherine, Viney, Will, Wiltshire, Deborah, Wong, Andrew, Walker, Neil, Burton, Paul R.

المصدر: Murtagh , M J , Blell , M T , Butters , O W , Cowley , L , Dove , E S , Goodman , A , Griggs , R L , Hall , A , Hallowell , N , Kumari , M , Mangino , M , Maughan , B , Mills , M C , Minion , J T , Murphy , T , Prior , G , Suderman , M , Ring , S M , Rogers , N T , Roberts , S J , Van Der Straeten , C , Viney , W ....

مصطلحات موضوعية: Data access, Data Access Committee (DAC), Data ethics, Data governance, Ethnography, Governance, Interdisciplinarity, Participant involvement, Qualitative research, demo, envir

Relation: https://kclpure.kcl.ac.uk/portal/en/publications/better-governance-better-access(602b3cc4-b120-43b1-9e2d-f42f00728251).html

الاتاحة: https://kclpure.kcl.ac.uk/portal/en/publications/better-governance-better-access(602b3cc4-b120-43b1-9e2d-f42f00728251).html